Propping up a dodgy memory

The next post I'm supposed to write is a description of a doctor's appointment some two weeks ago, and the modifications to my medications that arose from that visit. This isn't it, but I've been reminded (hi Mum) that I haven't blogged here in a month and so I thought I'd ramble for a bit at the traditional blogging hour of 1:30 am.

It's no wonder I'm so attracted to rocks – it looks like minerals are going to play a significant role in my next phase of treatment. This is an information-rich post about recent medical findings and treatments, intended primarily for my own records, so it might be a little light in the entertainment stakes (unless you're my Middle Sister who seems to enjoy this stuff).

Too tired for the multimedia extravaganza this should be, but hopefully I'll get the basics.

I note to my surprise that it's 9 days since I updated LJ, but I have been keeping better records over on FB, complaining vociferously on twitter, and taking rather more scientific notes in my little drug notebook, so all is not lost. Not *quite* all.

Took a day off the new supplements today because I've been suffering from shortness of breath, erratic heartbeat and nausea that this morning came to a head, shall we say, in spectacular fashion. The swollen throat also means I choke and cough when I lie down. Most of these symptoms are associated with salicylate overload and it's possible I've had too much fruit and veg lately. Silly me, trying to eat a bit more healthily within my limits, but it's mostly been "safe" stuff like potato, celery, and cabbage. Who knows what the supplements are doing to me.

I also had some Clinkers recently which was Very Naughty – food colouring and fruit flavours are definite no-nos. Worse, it was Bad Science to mess with too many variables at once. I have nerd shame.

Was fortunate last week to pick up a cancellation so was able to see Dr Nigel (psychologist) this morning, rather than wait another two weeks, and he gave me my Pyroluria results. In a nutshell, I unambiguously have Pyroluria: where Normal is <10 and Elevated is >15, I have 24.9. So what happens now?

So today was the day I took myself and my precious precious Pyroluria test paperwork to Clinipath in West Perth, the one place where they collect and process one's wee for shipping to the one lab in Queensland who do the actual testing.

Went to my GP today armed with internet info on Pyroluria and the important factoid that a family member had tested positive for it.

Seems like quite a while since I last managed a simple what-I-got-up-to-today post, but today I seemed to get a lot done, which feels worthy of note.