No subject fit for delicate ears

[stephbg]

[Poll #1455251]

Comments

[mortonhall.livejournal.com]

another expensive specialist has suggested that it might be related to problems with tonsils. Do you still have your tonsils?

[stephbg.livejournal.com]

No, but I had chronic tonsilitis from 12-17 before they were removed, and an almost constant diet of antibiotics in that period.

[mortonhall.livejournal.com]

interesting. There may be a link.

[alias_sqbr]

Huh, my experience was similar. (Though I got mine out at 12, and continued to have nasty throat infections and antibiotics all through my teens anyway)

Not sure it's a useful correlation though, even if it can be generalised (the cure for cfs is..don't be a sickly child!)

[chaosmanor.livejournal.com]

I've done incredibly well on an exercise regime, but 1) I don't have chronic fatigue, I have an exciting cocktail of genetic and bacterial problems, and 2) everyone had to figure out how to unblock my lungs first.

Of course, I still get really, really tired. But I can run 2 kms now, while really, really tired. (I fantasise about what it might feel like for someone else to run. Running, without the universe-is-about-to-end signals from my body?) And there are huge payoffs for me in lung function and general endurance. Hah! That bus I want to catch? I can run 50 metres for it now. And then survive a working day.

Beginning the process of exercising was fucking miserable. Excruciating. It took a long time and it hurt. But, you know, I'm trying to avoid a lung transplant, so I kept going. It's taken me two years to get to two kms from complete inertia.

[rdmasters.livejournal.com]

Slapping said specialist on the forehead is also an option that should not be ruled out.

Plusses:
o It is an easy exercise to get motivated about, and if you get a good rhythm up, a good cardio-vascular work out. Remember, it's all about pace and repetition. Remember to swap hands regularly to avoid RSI.
o It is very mentally and emotionally therapeutic

Minusses:
o Could be costly
o Will get you talked about in polite society (this could also be a plus)
o You may need to swap therapists after a while, when the old one wears out
o Not generally covered by Medicare or private funds

[fe2h2o.livejournal.com]

Sadly, I've been on Facebook too much of late, so I went looking for the like button...

[callistra.livejournal.com]

*like*

[bunny-m.livejournal.com]

Perhaps respond with:

"I believe the best cure for having to deal with fuckwit arseholes is to set them on fire and watch them burn," whilst extracting a lighter from a handy pocket?

I dunno, maybe the text changes the tone, but I'd certainly feel a strong urge to strangle them in that situation, at the very least.

[stephbg.livejournal.com]

He seemed genuinely regretful that he couldn't help.

[bardiegrub.livejournal.com]

I'd be concerned about any specialist that claimed to have one simple answer for everyone with chronic fatigue.

[alias_sqbr]

I nearly said the first option, but only sarcastically.

I'm inclined to think that one of the factors leading to me getting even sicker than I was before and having to quit my job is going on an exercise regime. I'm not sure "Screw him" quite covers it.

Mind you, some people do find exercise helpful. But it's a dangerous path that needs to be tread carefully, not used as a universal solution.

[redbraids.livejournal.com]

While I am not a (medical) Dr, and do also believe in holistic approaches, the one person who I know has beaten CF has done so with exercise. Every day they pushed themselves a bit further with walks, and somehow it worked. It could be a one-off thing that only worked for them, but I saw them do it.

[purrdence.livejournal.com]

But won't exercise leave one more fatigued? *confuzzled*

[stephbg.livejournal.com]

The idea is to push *just* beyond what you're body is telling you. Again and again and again until you feel better. Long ago I found this a helpful test: does exercise make me feel better or worse? When I'm not having a flare I'm really lucky: when I exercise the endorphin fairy comes to play and I feel GREAT! That has not been the case for some time now, but I keep trying.