ext_54495 ([identity profile] fe2h2o.livejournal.com) wrote in [personal profile] stephbg 2013-06-26 06:48 am (UTC)

If it's any encouragement, I met (well, I've been chatting with her weekly this year while we wait for kids... but found out) a patient of Dr Nathan's last night (_bizarrely_... she and another mother were discussing the changes in her diet, and were referring to words that sounded like ones I'd read on the wiki about pyroluria... I mentioned that I had a friend who had just been given a diagnosis of pyroluria and she said that's what she has) and Dr Nathan is _definitely_ the one to go to. Of course, she does strike me as at the fringier end of the community [homeschooler, after all:-) ], but she has been _very_ happy with him since her diagnosis in Feb.)

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